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November is National COPD & Alpha–1 Awareness Month


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Ph: 1–866–END–COPD
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COPD Resources and News for Living and Advocacy


Emphysema Foundation For Our Right To Survive has collected COPD news and resources including videos, books, advocacy tips, trials, and studies. Living with COPD, while a change in lifestyle, is not a death sentence.

WELCOME TO EFFORTS!

Welcome Message, Conduct Guidelines & Disclaimer


LIVING WITH COPD
Everyday Support & Explanations

COPD Pocket Consultant Guide App for Ios and Andriod

Educational Videos and Podcasts Learn about COPD and healthier living
New Videos added October 2019

Causes, Symptoms, & Overviews
- Breathing Techniques
- Coping with Everyday Tasks
- Diagnosis & Testing
- Doctor Visits
- Exacerbations & Panic Attacks
- Exercise, Rehabilitation
- Medicines & Devices
- Nutrition
- Oxygen, Oxygen Equipment & Oximeters
- Sleep Disorders, Apnea
- Stem Cell Article from Jim Nelson
- Surgery (Transplant, LVRS, BVR, Stents)
- Travel (including O2 on airlines)

⭐ COPD Exacerbations: A Patient and Physician’s Perspective John Linnell, John R Hurst November 8, 2019

Suggested Inhaler Sequence — Previous
Suggested Inhaler Sequence — Current

Oxygen Manifesto, Oxygen Manifesto, Part 1: Advice from 3 Respiratory Specialists Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem

Oxygen Manifesto, Oxygen Manifesto, Part 2: the Devices (Advice from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem

Oxygen Manifesto, Oxygen Manifesto, Part 3: Tips and Tricks from 3 Respiratory Specialists) Noah Greenspan, Mark W Mangus Sr, RRT, RPFT, FAARC, & Oxygen Expert Ryan Diesem

Local Pulmonary Rehabilitation Programs - EFFORTS List
Find a Local Pulmonary Rehabilitation Program LiveBetter.org

American Association of Cardiovascular & Pulmonary Rehabilitation — AACVPR Resources

10 Exercise Myths and Truths: Advice from a Respiratory Specialist Noah Greenspan

Pulmonary Rehab Alternatives

Depression and COPD Q & A

Find a Local Support Group
Find a Physician — AMA



COPD Medicare Home Oxygen Reimbursement

👉📅❗ 2020 Medicare by State — Open Enrollment Ends December 7th

Medicare, Medicaid and Social Security
Medicare.gov: Find and Compare Information about Hospitals

Assistance: Gov, Social and Misc

Glossary of COPD Words and Terms

Must Read Publications

- COPD Foundation’s Slim Skinny Reference Guide®
- Adventures of an Oxyphile 2 Free download of the 2nd edition
- Adventures of an Oxyphile 2 Free Audiobook download of the 2nd edition
- PulmCC Free weekly email with latest in pulmonary & critical care
- The Pulmonary Paper This is a paid subscription

         Click here for more books

Special Interest Patient Surveys

- Join the COPD Patient–Powered Research Network
- Members Personal Pages and Profiles
- Stigma and Stereotypes
- Trans Tracheal Survey

Smoking and Tobacco

- Still Smoking with Emphysema?
- Cigarette Anyone?
- Patient Stories
- Quitsters–Stop Smoking Group
- Survey: More Than 1 in 5 Millennials Use E–Cigarettes

Questions and Answers by Professionals

- Q & A Oxygen Equipment: (Pete’s Posts)
- Q & A Medical: Drs Karpick, Yeager and Petty
- Q & A Respiratory Therapy/Specialists
- Q & A Transtracheal Oxygen (TTO)

Miscellaneous

Lots of Links to Other Sites of Interest
American Lung Association

👉  Clinical Trial  👈

LEEP Losartan Effects on Emphysema Progression LEEP is a randomized clinical trial evaluating the effect of Losartan in helping people with Chronic Obstructive Pulmonary Disease (COPD) with emphysema – a disease of the lungs. We are looking for adults 40 years of age or older, current or former smokers, with COPD to join our study. The study is conducted in different states across the country.

ADVOCACY/AWARENESS

Advocacy

- Talking Points for Presentations
- COPD Foundation — The COPD Action Center

- Tell Congress: Support the Climate Change Health Protection and Promotion Act

- Managed Health Care Associates Works to Add Patient Voices to Advocacy
- Protect Limits on Mercury and Air Toxics

- 2014–2015 National & State Estimates of COPD Morbidity & Mortality
- 2011 COPD Statistics — CDC By State
- 2002 Statistics — National Lung, Heart, and Blood Institute

COPD Awareness Month


COPD Navigator Presents: It’s COPD, Damnit

- November is National COPD Awareness Month
- November is Alpha-1 Awareness Month
- Healthy Lung Month — October 2019
- October Is Healthy Lung Month
- World Lung Day 2019: Healthy Lungs For All
- NIH statement on World COPD Day 2018
- State COPD Legislation Passed in 2012
- 2012 COPD Proclamations Page
- 2011 COPD Proclamations Page
- Letters to Editor

COPD in the News & Current Projects

- 2019 COPD Foundation News and Events

- FeNO May Assist in Diagnosing Cough Variant Asthma in Chronic Cough
- European 3TR Project Unites Experts in Effort to Make Treatment More Personal and Effective
- Can C–Reactive Protein Improve Treatment for COPD Exacerbations?
- Stem Cell Transplants Used to Grow Fully Functional Lungs in Mice
- New Canadian National Report Highlights Gaps in COPD Diagnoses, Care
- Should You Work Out When You Are Sick?
- COPD: A Major Predictor of Early Mortality in Rheumatoid Arthritis
- Certain Inhaled Corticosteroids Linked to Increased Pneumonia Risk in COPD
- Cardiovascular Diseases Undiagnosed and Untreated in Large COPD Cohort
- No Difference Between Placebo and Metoprolol in Preventing COPD Exacerbations
- Seasonal Variations of COPD Exacerbations Call for Timely Preventive Measures, Study Suggests
- Aclidinium Bromide Safe, Reduces Exacerbations in COPD With CV Risk
- How Do Seasonal Variants Affect Outcomes, Costs in COPD?
- Rates and Predictors of Hospital Readmission for COPD Exacerbation
- Safety Profile of Revefenacin Administered With Formoterol in COPD
- Depression Linked to Increased Clinical Burden, Hospitalization Risk in COPD
- Predictors of Suboptimal Peak Inspiratory Flow Rate in COPD
- Duaklir Now Available to COPD Patients in US, Circassia Announces
- COPD Risk May Increase From Occupational Disinfectant Use
- Thinking Outside the Lungs: Extrapulmonary Manifestations in PAH
- COPD Therapy Aclidinium/Formoterol Now Available
- Exhaled Breath Profiles: Biomarker for Diagnosing COPD Exacerbations
- Managing Influenza in Patients With Preexisting Respiratory Conditions
- High–Flow Nasal Oxygen With Noninvasive Ventilation May Lower Reintubation Risk
- Tudorza Reduces COPD Flare–ups Without Increasing Risk of Cardiovascular Complications or Death, Phase 4 Trial Shows
- Does Cardiorespiratory Fitness Affect Lung Cancer Risk Among Male Smokers?
- Study: Choose Right Inhaler in COPD Patients
- Researchers Identify Genetic Variations Linked to Oxygen Drops During Sleep
- Oscillating Vest Keeps COPD Patients Out of Hospital
- Accelerated Lung Function Decline Even in Low–Intensity Smokers
- Home Oxygen Use Associated With Worsened Physical Function in COPD and IPF
- LAMA Appears Safe for COPD Patients With Recent Exacerbations
- Spirometry After Bronchodilator Treatment Improves Diagnosis Accuracy, Study Shows
- Pulmonary Embolism With Tobacco Dependence Linked to 30–Day Readmission
- High–Concentration Oxygen Therapy Beneficial for AECOPD With Acute MI
- Beta–Blockers Best Avoided in COPD Patients Without CVD
- Twice–Daily Ensifentrine Improves COPD Symptoms at Up to 4 Weeks
- Higher Frequency of Typical Usual Interstitial Pneumonia Radiologic Pattern in COPD
- Factors Identified as High Risk for VTE in Acute COPD Exacerbation
- CDC Releases Clinical Guidance on E–Cigarette Lung Injury
- Asthma, COPD, and Asthma–COPD Overlap Differentiated Using Sputum Cell Count
- Any Level of Smoking Can Lead to Long–Term Lung Damage, Study Says
- CDC: Seasonal Influenza Viruses Circulating Widely in Southern Hemisphere
- Variables in Bronchiolitis Hospitalization Not Linked to Higher Asthma Diagnoses
- Obstructive Sleep Apnea Symptom Subtypes Identified Using Novel Algorithm
- Bayer Will Invest $30M in Joint Research Lab for Chronic Lung Diseases
- DRIP Scoring System Improves Antibiotic Prescription Patterns for Pneumonia
- Lung Screening Saves Lives, but Who Should Be Screened?
- Influenza Vaccine Modestly Effective in Preventing Hospitalizations in COPD
- “Smart Shirts” Measuring Daily Lung Function May Help Monitor COPD, Other Respiratory Conditions
- Interim Guidance for Health Care Providers Evaluating and Caring for Patients with Suspected E–cigarette, or Vaping, Product Use Associated Lung Injury CDC Update
- Major Asthma Guideline Update: ICS–LABA as–needed Replaces Albuterol
- FDA: Stop Using Vaping Products Containing THC
- Single Inhaler Triple Therapy Can Improve Lung Function in Uncontrolled Asthma
- Smoking Cessation Program in Cancer Setting Associated With High Abstinence Rates
- Researcher Awarded Nearly $7.5M to Find Treatments for COPD, Other Disorders
- Tiotropium/Olodaterol Associated With Significant Lung Deflation in COPD
- FDA Rejects NDA for Triple Combination COPD Therapy
- Dorney–Koppel Foundation Spotlights COPD at Stanford Medicine X | CHANGE Conference
- Nintedanib Associated With Lower Rate of FVC Decline in Interstitial Lung Disease
- EAACI and ERS Release Statement on Severe Asthma Exacerbations
- Individualized COPD Prediction Model Validated for General Populations
- Chronic Rhinosinusitis Associated With Multiple Comorbid Conditions
- Three–Drug Combo Promising in Hospital–Acquired, Ventilator–Associated Bacterial Pneumonia Study
- Real–World Study Shows Mepolizumab Reduces Exacerbations in Severe Eosinophilic Asthma
- Gala’s RheOx System to Treat Chronic Bronchitis Receives CE Mark for Health and Safety in EU
- Sarcoidosis on Associated With Higher Mortality vs COPD, IPF on Transplant List
- Early Palliative Care May Improve Survival in Advanced Lung Cancer
- Inhaler Misuse in Asthma and COPD: Undoing 40 Years of Incorrect Technique
- Wrist–Worn Step Trackers Accurate in Predicting Patient Health Outcomes
- Study Examines Cardiovascular Disease Impact in Patients With COPD
- Growth Differentiation Factor–15 Linked to Transplant–Free Survival in PH
- Priority Health Joins Insurers That Will Cover the Zephyr Valve for Emphysema
- Budesonide–Formoterol Reliever vs Maintenance Therapy for Severe Asthma Exacerbations
- FDA Panel Votes on OTC Nicotine Mouth Spray for Smoking Cessation
- Smaller Ventricular Size May Be Associated With More Severe Asthma
- Plasma Biomarkers of Idiopathic Pulmonary Fibrosis May Predict Survival
- Speaker of the House Unveils Plan to Lower Drug Costs
- Treatment to Prevent Active Tuberculosis Could Be Beneficial to Millions
- COPD: the World’s Biggest Neglected Disease?
- World Trade Center Lung Injury May Be Predicted by Metabolic Syndrome
- Vaping: The Threat to Public Health and the ATS Response
- Vaping Triggers Cellular Responses Similar to Cigarette Smoking, Potentially Increasing Risk of Emphysema
- Comparing Efficacy of Once vs Thrice Daily Aminoglycosides in Cystic Fibrosis
- Balloon Pulmonary Angioplasty Effective for Chronic Thromboembolic PH
- Statement on FDA Efforts to Encourage Patient Engagement in Medical Device Clinical Investigations
- Regular Exercise Improves Asthma Control but not Peak Expiratory Flow
- Performing Accurate Body Plethysmography Important for Emphysema in BLVR Referral
- Pulmonary Hypertension Linked to Mortality After Atrial Septal Defect Repair
- Blood Eosinophil Levels in COPD: Too Variable for Biomarker Use?
- FDA Warns of Possible Interstitial Lung Disease, Pneumonitis With Certain Breast Cancer Drugs
- Home–Based Pulmonary Rehab Improves Exercise Tolerance, QoL in Severe Asthma
- FDA to Review Drug–Device Combo for Pulmonary Arterial Hypertension Treatment
- COPD Assessment Test Valid Method to Measure QoL in Bronchiectasis
- Probiotics May Reduce Costs for Flu–Like Respiratory Tract Infections
- Sotatercept Receives Orphan Drug Status for Pulmonary Arterial Hypertension
- Diagnostic Yield of Thin vs Ultrathin Bronchoscope for Peripheral Pulmonary Lesions
- ATS: Military Deployment to Southwest Asia May Lead to Respiratory AEs
- Expansion of the Learn More Breathe Better Program and Breathe Better Network
- FDA Approves Treatment for Systemic Sclerosis–Associated Interstitial Lung Disease
- Nuvaira Hopes to Go with the Flow in COPD See Clinical Trials
- Expanding the Potential of Spirometry to Identify Early Impairment in COPD
- Underused Drug Combination May Increase Survival in Lung Transplant
- Addition of Surgical Resection in Stage IV NSCLC May Improve Survival
- Air Pollution Associated with Worsening Emphysema
- Orvepitant: A Novel Antitussive Therapy for Chronic Refractory Cough?
- Nearly Half of Patients With COPD Made Errors in Inhaler Use, Study Finds
- Prostaglandin D2 Distinguishes Asthma and COPD from Asthma–COPD Overlap Syndrome
- Fixed–Dose, Triple–Combination Therapy Effective in COPD Trial
- Kali–Extracts Launches Website for Cannabis–based COPD Treatment Candidate RespRX
- Statins Reduce C–Reactive Protein and IL–6 in COPD But Not Mortality
- Breztri Aerosphere Reduced COPD Exacerbations Better Than Approved Therapies, Phase 3 Trial Shows
- New Definition for Pulmonary Hypertension in Left Heart Disease: Haunted by How We Measure the Wedge?
- Lung Cancer CT Scan Can Identify Smoking–Related Diseases
- Advisory from CDC re: Severe Pulmonary Disease Associated with Using E–Cigarette Products
- COPD Outcomes Using Single Inhaler Triple Therapy vs Dual Therapy
- Comparing Open Lung Ventilation With Conventional Ventilation in ARDS
- Effectiveness of a Pulmonary Rehabilitation Program in Severe Asthma
- COPD Patients With Acute Exacerbations Should Receive Noninvasive Ventilation Regardless of Certain Characteristics, Study Suggests
- Adherium and Summatix Join Forces to Improve Hailie Sensor Digital Platform
- All of Us Research Program to Expand Public Engagement Efforts with New Partner Awards
- Physiologic Insights from the COPD Genetic Epidemiology Study
- Inhalation Technique Errors with Metered–Dose Inhalers Among Patients with Obstructive Lung Diseases: A Systematic Review and Meta–Analysis of US Studies
- Ambient Air Pollution Significantly Associated With Increases in Emphysema
- Findings of 3 Studies of Nerve Ablation Therapy in COPD Patients to Appear in Science Journals, Nuvaira Says
- Measuring and Monitoring Skeletal Muscle Function in COPD: Current Perspectives
- Inspiratory Muscle Training May Be an Option for Patients Who Decline Pulmonary Rehabilitation for COPD
- Air Pollution May Increase Emphysema Risk Among Non–Smokers, Study Says
- Spiration Valve System Helps People with Severe Emphysema Breathe More Easily, Study Finds
- Ensifentrine Dry Powder Inhaler Safe, Effective for COPD in Phase 2 Trial
- Exhaled Volatile Organic Compounds Sensitive to Underlying Inflammation
- Just breathe: Boehringer Ingelheim’s Latest COPD Campaign Centers on ‘Inhaleability’
- ‘Colorful’ Therapist Uses Exercise to Improve Patients’ Lives at NYC Pulmonary Rehab Clinic Noah Greenspan!
- Good Fitness Cuts Risk of COPD, Long–Term Study Suggests It started in the 70s!
- Walgreens ‘Find Care’ Program Expands Care Management to People with COPD, Asthma, and Diabetes
- National Jewish Health Ranked Nation’s #1 Respiratory Hospital For 18th Year by US News & World Report
- Early Trial Findings Hint at SNG001 Aiding COPD Patients with Viral Infections
- COPD–Related Cognitive Impairment Unlike Other Forms of Dementia
- New Research on COPD Aims to Selectively ‘Disarm’ Specific Pathogens
- Erdosteine Deemed Superior to Other Mucolytic Agents for COPD Treatment
- Australian Researcher Awarded $100K to Study Non–invasive Ventilation for Sleep–disordered COPD Patients
- Could Vascular Dysfunction Be a Primary vs Secondary Feature of COPD?
- Simple Blood Test for C–Reactive Protein May Guide Antibiotic Use in COPD Flares
- Increasing USPSTF Lung Cancer Screening Eligibility in African American Smokers
- Macrolide Antibiotics May Reduce Acute Exacerbations in COPD Patients, Review Study Suggests
- Finger–Prick Blood Test Could Safely Reduce Antibiotic Use in Patients with COPD
- Study Validates Optimal Lung Function Threshold for Identifying People at Risk for COPD
- Personalized Medicine for Patients with COPD: Where Are We?
- Increased Risk of Peripheral Arterial Occlusive Diseases in Patients with COPD: A Nationwide Study in Taiwan
- COPD Patients at Greater Risk of Fractures and Osteoporosis Than Those with Other Diseases , UK Study Finds
- Triple Combo Therapy Breztri Aerosphere Approved in Japan for COPD
- Deal Plans to Make Yupelri Treatment Available in China and Adjacent Territories
- The Challenges of Pulmonary Rehab in Facilities May Be Overcome in the Home
- EFFORTS’ Jean Romme Attended ATS 2019 and Took Notes for Us
- Boehringer Ingelheim, Alberta Government Create Partnership to Improve Patient Care
- Use of Inhaled Steroids May Reduce Lung Cancer Risk in COPD, Study Suggests
- Add–on Fasenra Does Not Ease COPD Exacerbations, Phase 3 Results Show
- First Patients Successfully Treated in the Nuvaira AIRFLOW–3 COPD Pivotal Trial
- Georgia Hospital Using Zephyr Valve System to Treat Breathing Problems Due to Emphysema
- Long–Term Ozone Exposure Associated With Increased Mortality Risk
- Analysis Shows Effectiveness of Verona’s Ensifentrine Treatment on COPD Symptoms
- Can Vaping Cause Lung Problems?
- Verona Starts Phase 2b Trial to Test Nebulized Ensifentrine as Add–on Therapy
- E-–Cigarette Use, Flavorings May Increase Heart Disease Risk, Study Finds
- Azithromycin May Reduce Treatment Failure After COPD Exacerbations
- Telehealth Rehabilitation Lowers Hospital Readmissions After COPD Exacerbation, Study Finds
- Common Lung Diseases Associated With Cardiovascular Risk
- With Prevalence of Type 2 Diabetes and COPD Increasing Worldwide, Researchers Look for Links
- COPD Exacerbation from Biomass Smoke Likened to Risk Posed By Tobacco Smoke, Study Cautions
- Eisenhower Health 1st in Southern California to Offer Landmark Treatment for COPD/Emphysema
- Carrot Rewards Wellness App Launches COPD Campaign – Go Canada!
- COPD Patient Quality of Life Improved by Integrated Disease Management
- Thunder Fever: How Thunderstorms Can Trigger Asthma Outbreaks
- FDA Gives Marketing Clearance to Loop Wearable Wristband that Remotely Monitors COPD Patients
- Overnight In–House Intensivists Don’t Clearly Improve Care: Review
- Titrating PEEP Using Esophageal Pressures Did Not Improve ARDS Outcomes (EPVent–2)
- CSA Medical’s RejuvenAir System Gets FDA Breakthrough Device Designation But What Does It Do?
- Circassia Adding Cardiovascular Safety Data on Tudorza Label for COPD Patients
- FDA Clears Spry Health’s Remote Monitoring Wearable for COPD Patients
- FDA OKs Duaklir Fixed–Dose Combination Inhaler for COPD
- Temple Hospital First in Nation to Implant New Valve into Lungs of Emphysema Patient:
- New Tool Identifies Support Needs of COPD Patients, Helping to Make Care More Personal and Holistic
- How the Keto Diet can Help People Breathe Easier
- Incorporating Healthy Habits to Help Manage COPD: A Specialist’s View
- American Lung Association® Nutrition and COPD
- Non–Invasive Imaging Technique Valid for Identifying Small Airway Disease in Lung
- Patients and Caregivers New Access to FDA “Request to Connect”
- El Camino Hospital 1st in California to Offer New Treatment for Severe COPD/Emphysema
- Daily Aspirin Might Ease COPD Flare–Ups
- US Senators Relay Personal Experiences as They Chastise Pharma Execs for High Drug Prices
- 2019 Important Alert for Medicare Patients Who Use Supplemental Oxygen–especially Liquid O2
- Patient–Reported Consequences of Community–Acquired Pneumonia in Patients with Chronic Obstructive Pulmonary Disease
- The Lung is Not the Only Organ Affected by Air Pollution
- Development for Asthma, Allergies and Other Respiratory Diseases
- Natural Ways to Cleanse Your Lungs
- Atrial Fibrillation Prevalence Increasing in End–Stage COPD
- Statins Linked to Better Outcomes and Improved Lung Function
- When Mucus Can be Key to Treating Colon and Airway Diseases
- Researchers Breathe New Life into COPD Research Using Mouse Models
- FDA Approves 1st of Wixela, Generic of ADVAIR DISKUS®
- Long–Term Use of Statins Reduces Mortality, Inflammation in COPD
- ß–Blocker Therapy and Risk of Chronic Obstructive Pulmonary Disease
- LUNG REGENERATION Mayo Clinic center For Regenerative Medicine
- Flu Shot Crucial for Anyone With COPD
- Smoking Cessation Key Component of Cancer Moonshot Program
- What Exercises Can Help Increase Lung Capacity?
- Download the 2019 GOLD Reports for Personal Use
- Optimizing US Home Oxygen Therapy – Addressing Patient and Clinician Reports of Problems with Home Oxygen Accessibility
- COPD and Anxiety: Researchers Test Promising Approach
- Which Patients With COPD Are Affected the Most by Extreme Weather?
- New Mucus Study Could Hold the Key to Clearing Your Phlegm
- Humidity Levels and COPD
- To Better Treat COPD, Scientists Look to Tailored Approaches for Deadly Lung Disease
- What to Know about Steroids for COPD
- Mucus, Cough and Chronic Lung Disease: New Discoveries
- Myths about COPD
- Does COPD Show Up on an X-ray?
- Does High Altitude Affect COPD?