EFFORTS - P. O. Box 20241
Kansas City, Mo. 64195-0241
Ph: 1-866-END-COPD
The information on (or referenced by) the EFFORTS' website and discussion lists is not intended or implied to be a substitute for the professional medical advice of your own healthcare providers.


  Emphysema/COPD Takes Your Breath Away


ABOUT EFFORTS LIVING WITH COPD ADVOCACY/AWARENESS
Welcome Everyday Support and Explanations Background
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About Us

About EFFORTS
The Origin of EFFORTS
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Smoking and Tobacco
Still Smoking with Emphysema?
Cigarette Anyone?
Patient Stories
Quitsters-Stop Smoking Group

Miscellaneous
Links to Medical Equipment Suppliers
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Video Resources

Causes, Symptoms, & Overviews
- Diagnosis & Testing
- Medicines & Devices
- Exercise, Rehabilitation
- Breathing Techniques
- Oxygen, Oxygen Equipment & Oximeters
- Nutrition
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How to Use Your Inhalers

AACVPR Resources
- Take Control of Your COPD Videos
- Depression and COPD
- Depression and COPD Q&A
- Pulmonary Rehab Alternatives

Find a Pulmonary Rehab. Facility*
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Find a Physician - AMA

Our Members Speak About Their COPD

COPDF Medicare Home Oxygen Reimbursement

Medicare, Medicaid and Social Security
Q&A on Medicare Oxygen Payment
Assistance: Gov., Social and Misc.

Glossary of COPD Words and Terms


Special Interest Patient Surveys

Members Personal Pages and Profiles
Stigma and Stereotypes
New Member COPD Background Survey
New Survey 2007 Spiriva Update
Trans Tracheal Survey

Questions and Answers by Professionals
Q&A Oxygen Equipment: (Pete’s Posts)
Q&A Medical: Drs. Karpick, Yeager and Petty
Q&A Respiratory Therapy/Specialists<
Q&A Transtracheal Oxygen (TTO)

New Meds, Trials and Studies
-Clinical Trials-Center Watch List
-ClinicalConnection (US and International Trials)
Clinical Trials GPS
COPD Study for Los Angeles residents
-RENEW Clinical Study evaluating the RePneu® system.
-ASPIRE Clinical Study evaluating the AeriSeal System.
-Current/former smokers (Boston)
    Click here for brochure.
-Uptake Medicale BTVA (VAPOR TRIAL)
-Long Term Oxygen Treatment Trial
-Clinical Trials - Government List
-Roche: Gamma Retinoid Trial (TESRA)
-Emphasys Medical VENT Trial
-IBV Sites & Screening
-Participating Members Notes on Valve Trials
-Cascade Study COPD-Depression
Talking Points for Presentations
Latest Statistics - NLHBI
Latest Statistics - CDC

COPD Awareness Month
2012 COPD Proclamations Page
2011 COPD Proclamations Page
Letters to Editor
2010 COPD Events and Planning Guide
2010 COPD Proclamations Page

Current Projects
COPD Foundation News and Events
Medicare Oxygen Payment letter
Creation of a COPD Program at CDC
Sign the COPD Postage Stamp Petition!
Ending Disabled Waiting Time
Congressional COPD Caucus

EFFORTS Supplies
Brochures PDF Form for Copying
Brochures, How to Order

Events
June 2012 NHLBI Public Interest Org Notes
June 2012 NHLBI PIO Public Advisory Board Notes
2012 ATS: Hyperinflation in COPD
2012 ATS: Pulmonary Rehab Across Spectrum of Diseases
Dec 2011 DC COPD Conf Photos LTOT Conf Report 2011
Photos from Denver LTOT
EFFORTS Family Gatherings
EFFORTS in the News

Publications
The Pulmonary Paper
Dr Tom Petty (Adventures of an Oxyphile2, etc)
Magazines and Books on COPD
PulmCCM Central

EFFORTS Newsletters
 

Newsfeeds

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New On Our Web Site!

09.18.13 - COPD Study for Los Angeles residents: If you are between 40 and 80 years of age and have COPD symptoms, you may qualify for a research study (participants will receive all study related medical care at no charge, including doctor visits, laboratory services, investigational medication and payment for study related time and travel).

09.18.13 - Dr Maria Buckley, Staff Psychologist at The Miriam Hospital aswers EFFORTS Members' Question about COPD and Depression . Check out all AACVPR Resources provided to EFFORTS members.

06.24.13 - PneumRx Inc., is running an FDA-approved pivotal trial (RENEW) to evaluate the RePneu® Lung Volume Reduction Coils for treatment of severe emphysema. Visit PneumRx Website and type RENEW into the search box.

04.18.13 - Read Jim Nelson's COPD and Allergies article article (scroll to Page 3) in Carondelet Hospice and Palliative Care's Spring 2013 newsletter (reproduced with permission). Great job, Jim!

04.15.13 - We've made extensive updates to our Air Travel With Oxygen page with links to approved devices and airline requirements.

03.09.13 - EFFORTS board member Edna Fiore's article Patient Promotes Respiratory Awareness is published in the March 2013 issue of AARC Times and included here with permission. Great job, Edna!

01.20.12 - How to Use Inhalers is a site providing video training and other information to teach patients the best techniques to use inhalers in asthma and COPD.

06.12.12 - June 22, 2012 Michigan Alpha 1 and COPD Resource Meeting Announced. For more information, click here.

05.27.12 - EFFORTS member Polly Taylor made presentations at the 2012 American Thoracic Society Meeting. Read Polly's presentation on Pulmonary Rehabilitation Across the Spectrum of Illnesses for Patients with COPD. Also, read her presentation on Hyperinflation in COPD - Implications for Treatment.

05.20.12 - We have added a new entry to the Publlications portion of our Table of Contents. PulmCCM Central is a summary of current literature about pulmonary disease as well as other areas of interest to professionals and patients. PulmCCM Central is not associated with EFFORTS.

03.09.12 - EFFORTS board member Hilde Hanson authors ICC Conference Summary article for the International COPD Coaltion.

03.08.12 - Check out and participate in our new (experimental) Spotlight on Our Members page.

02.29.12 - March 22, 2012 Michigan Alpha 1 and COPD Resource Meeting Announced. For more information, click here.

02.29.12 - Karen Deitemeyer has contributed photos from the recent NASCAR Drive4COPD event in Florida. Thanks Karen!

02.25.12 - EFFORTS to participate in the COPD Foundation's Virtual Lobby Day (date to be announced). Also participating are the American Association for Respiratory Care and the Alpha-1 Foundation. The Virtual Lobby Day provides an avenue for groups such as EFFORTS to address Congress in areas of concern relating to health care policy. Read the COPD Foundations Alert .

12.08.11 - EFFORTS members travelled to Washington, DC for the 2011 COPD Conference and Workshop. Click here to view photos.

12.01.11 - We've been working behind the scenes on a Vidoes page. See videos of Nick Jones' and Karen Deitemeyer's recent trip to the COPD Foundation's Community Workshop in Nov 2011 plus other videos that may be of interest.

10.23.11 - November, 2011 is Chronic Obstructive Disease Awareness Month. Visit our 2011 Proclamations Page.

09.27.11 - EFFORTS State/Act Community Leaders.Page Updated. Let us know of changes!


09.22.11 - Check out our new searchable Pulmonary Rehabilitation page.

08.22.11 - We have added a page to list AACVPR resources.

07.02.11 - Chris Garvey, NP of the AACVPR shares this document (MS Word document) about pulmonary rehabilitation alternatives and continuing on your own after PR.

07.01.11 - Sept 15, 2011 Michigan Alpha 1 and COPD Resource Meeting Announced. Dr Kyle Hogarth, pulmonary disease expert (to include Alpha 1) will be speaking. For more information, click here.

06.20.11 - EFFORTS members continue to advocate for COPD sufferers. EFFORTS board member Edna Fiore has an article My Journey With COPD: Advocacy and Empowerment in the June 2011 issue of AARC Times. The American Association for Respiratory Care is a professional organization, consisting of 50,000 respiratory therapists, physicians, and other health care professionals assisting persons with respiratory diseases. Included on our Website with the gracious permission of AARC.

06.19.11 - New Boston area trial announced. Current/former smokers (Boston)
    Click here for brochure.


04.27.11 - EFFORTS Board Member Jean M Rommes has an article published in the May 2011 issue of AARC Times. The American Association for Respiratory Care is a professional organization, consisting of 50,000 respiratory therapists, physicians, and other health care professionals assisting persons with respiratory diseases. Click here to read "Patients Can Manage Their Disease, But It Requires Some Heavy Lifting" included on our Website with the gracious permission of AARC.

04.25.11 - June 24, 2011 Michigan Alpha 1 and COPD Resource Meeting Announced. For more information, click here.

04.17.11 - Conference Report from March 31-April 2 LTOT. Thanks to Karen D.

02.25.11 - March 25, 2011 Michigan Alpha 1 and COPD Resource Meeting Announced. For more information, click here.

11.01.10 - The 2010 EFFORTS Photo Contest has been completed. Click here for a list of winners.

10.30.10 - The 2010 Proclamations Page has been added.

10.25.10 - Michigan Alpha 1 and COPD Resource Meeting Announced. For more information, click here.

10.25.10 - New article added. Mucus Clearing Devices by Richard D Martin, used by permission. Check out our Medical Info page first started in 1998 (and currently being revised).

09.21.10 - New article added. Mucus Clearing Devices by Richard D Martin, used by permission. Check out our Medical Info page first started in 1998 (and currently being revised).

09.05.10 - Sign the COPD Postage Stamp Petition!

09.05.10 - The EFFORTS Autumn Newsletter has arrived. Check it out or dig through the archives.

09.15.10 - New prize added in the EFFORTS Photo Contest - Adventures of an Oxyfile2 donated by EFFORTS President Linda Watson Click here to see the prizes or here to check out and enter our photo contest

09.02.10 - Now available, “Adventures of an Oxyfile2 by Dr. Thomas L. Petty with chapters by Bob McCoy, Dr. Casaburi, and many others. This is must have information for the oxygen patient.

09.02.10 - Cascade Study COPD-Depression announced.

09.01.10 - Planning an event? Please visit COPD Events Planning 2010 for suggested goals and a link to let us know so that we can list the event.

08.20.10 - Thank you to Lakeisha Cheek for her help in redesigning our logo. Visit her Website at LBC Photography.

08.16.10 - 2010 is the Year of the Lung and November is COPD month. Please visit our Letters to the Editor-2010 page for ways you can help.

08.14.10 - New prize added in the EFFORTS Photo Contest - Freedom Sling donated by Eagle Respiratory Solutions, LLC. Click here to see the prizes or here to check out and enter our photo contest

08.14.10 - EFFORTS Mid-Summer Newsletter Released-Joan Esposito develops at least four newsletters per year chock-full of news items of interest to emphysema patients and others. Check out the mid-summer newsletter or dig through the archives.

07.21.10 - COPD Foundation Medicare Home Oxygen Reimbursement - Changes That May Affect You. Discussion of new competitive bidding rules.

06.28.10 - New prizes added in the EFFORTS Photo Contest! Click here to see the prizes or here to check out and enter our photo contest.

06.01.10 - EFFORTS Summer Newsletter Released-Check out the summer newsletter or dig through the archives.

06.01.10 - Free book downloads! Our books page has three new books for you to download, all from Thomas L. Petty, MD: "Adventures of an Oxy-phile", "Frontline Advice for COPD Patients" and "From Both Ends of the Stethoscope".

06.01.10 - Lansing, Michigan Gathering June 25 - Alpha 1 and COPD Resource Meeting Announced

06.01.10 - EFFORTS is pleased to announce the photo contest...show off your EFFORTS apparel or yourself!

04.27.10 - Maggie Borger has been added to the Executive Board on the EFFORTS Committee List page.

04.19.10 - The T-Shirt place is closed for now. Thanks for all your support and for helping to make it a success!

04.04.10 - Oximeter Sources Updated: Our Oximeter Source Page lists oxyimeter suppliers of we which are aware.

04.03.10 - New Video! Take Control of Your COPD: A Guide to Better Living (Video)

03.21.10 - EFFORTS Shirt Place Opens-Help support EFFORTS and make a fashion statement too!

03.20.10 - Too much email? Questions about posting guidelines? Want to join a side-group? Visit the List Member Page.

03.14.10 - Michigan Alpha 1 and COPD Resource Meeting Announced

03.01.10 - EFFORTS Spring Newsletter Released-Check out the spring newsletter or dig through the archives.

01.04.10 - EFFORTS Winter Newsletter Released-Check out the spring newsletter or dig through the archives.

01.02.10 - EFFORTS State/Act Community Leaders.Page Updated. Let us know of changes!



Breaking News

03.31.11 NHLBI funds nine organizations to improve awareness of COPD

11.11.10 COPDF Lauds Addition of Prevalence Question to 2011 State-Based Survey System Released by CDC

12.23.09 Nonin Survey: $10 Target Gift Card For Completing a Very Short Survey (first 300 respondents)

12.01.09 Industry-Changing SmartDose Mini Auto-Adjusting Oxygen Portable

10.01.09 The NHLBI's COPD "Learn More Breathe Better" Campaign Expands Community Network