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EFFORTS — PO Box 20241
Kansas City, MO 64195–0241
Ph: 1–866–END–COPD
The information on (or referenced by) the EFFORTS’ website and discussion lists is not intended or implied to be a substitute for the professional medical advice of your own healthcare providers.


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COPD Resources and News for Living and Advocacy


Emphysema Foundation For Our Right To Survive has collected COPD news and resources including videos, books, advocacy tips, trials, and studies. Living with COPD, while a change in lifestyle, is not a death sentence.

WELCOME TO EFFORTS!

Welcome Message, Conduct Guidelines & Disclaimer


LIVING WITH COPD
Everyday Support & Explanations

COPD Pocket Consultant Guide App for Ios and Andriod

Educational Videos and Podcasts Learn about COPD and healthier living

Causes, Symptoms, & Overviews
- Breathing Techniques
- Coping with Everyday Tasks
- Diagnosis & Testing
- Doctor Visits
- Exacerbations & Panic Attacks
- Exercise, Rehabilitation
- Medicines & Devices
- Nutrition
- Oxygen, Oxygen Equipment & Oximeters
- Sleep Disorders, Apnea
- Stem Cell Article from Jim Nelson
- Surgery (Transplant, LVRS, BVR, Stents)
- Travel (including O2 on airlines)

Suggested Inhaler Sequence — Previous
Suggested Inhaler Sequence — Current


Depression and COPD Q & A

Find a Local Support Group
Find a Physician — AMA


COPD Medicare Home Oxygen Reimbursement

Medicare, Medicaid and Social Security
Medicare.gov: Find and Compare Information about Hospitals

Assistance: Gov, Social and Misc

Glossary of COPD Words and Terms

Must Read Publications

- COPD Foundation’s Slim Skinny Reference Guide®
- Adventures of an Oxyphile 2 Free download of the 2nd edition
- Adventures of an Oxyphile 2 Free Audiobook download of the 2nd edition
- PulmCC Free weekly email with latest in pulmonary & critical care
- The Pulmonary Paper This is a paid subscription

         Click here for more books

Special Interest Patient Surveys

- Join the COPD Patient–Powered Research Network
- Members Personal Pages and Profiles
- Stigma and Stereotypes
- Trans Tracheal Survey

Smoking and Tobacco
- Still Smoking with Emphysema?
- Cigarette Anyone?
- Patient Stories
- Quitsters–Stop Smoking Group

Questions and Answers by Professionals

- Q & A Oxygen Equipment: (Pete’s Posts)
- Q & A Medical: Drs Karpick, Yeager and Petty
- Q & A Respiratory Therapy/Specialists
- Q & A Transtracheal Oxygen (TTO)

Miscellaneous

Lots of Links to Other Sites of Interest
American Lung Association

Clinical Trials
LEEP Losartan Effects on Emphysema Progression LEEP is a randomized clinical trial evaluating the effect of Losartan in helping people with Chronic Obstructive Pulmonary Disease (COPD) with emphysema – a disease of the lungs. We are looking for adults 40 years of age or older, current or former smokers, with COPD to join our study. The study is conducted in different states across the country.

ADVOCACY/AWARENESS

Advocacy

- Talking Points for Presentations
- COPD Foundation — The COPD Action Center

- Tell Congress: Support the Climate Change Health Protection and Promotion Act

- Managed Health Care Associates Works to Add Patient Voices to Advocacy
- Protect Limits on Mercury and Air Toxics

- 2014–2015 National & State Estimates of COPD Morbidity & Mortality
- 2011 COPD Statistics — CDC By State
- 2002 Statistics — National Lung, Heart, and Blood Institute

COPD Awareness Month

- NIH statement on World COPD Day 2018
- State COPD Legislation Passed in 2012
- 2012 COPD Proclamations Page
- 2011 COPD Proclamations Page
- Letters to Editor

COPD in the News & Current Projects

- 2019 COPD Foundation News and Events

- COPD–Related Cognitive Impairment Unlike Other Forms of Dementia
- New Research on COPD Aims to Selectively ‘Disarm’ Specific Pathogens
- Australian Researcher Awarded $100K to Study Non–invasive Ventilation for Sleep–disordered COPD Patients
- Could Vascular Dysfunction Be a Primary vs Secondary Feature of COPD?
- Simple Blood Test for C–Reactive Protein May Guide Antibiotic Use in COPD Flares - Macrolide Antibiotics May Reduce Acute Exacerbations in COPD Patients, Review Study Suggests
- Finger–Prick Blood Test Could Safely Reduce Antibiotic Use in Patients with COPD
- Study Validates Optimal Lung Function Threshold for Identifying People at Risk for COPD
- Personalized Medicine for Patients with COPD: Where Are We?
- Increased Risk of Peripheral Arterial Occlusive Diseases in Patients with COPD: A Nationwide Study in Taiwan
- COPD Patients at Greater Risk of Fractures and Osteoporosis Than Those with Other Diseases , UK Study Finds
- Triple Combo Therapy Breztri Aerosphere Approved in Japan for COPD
- Deal Plans to Make Yupelri Treatment Available in China and Adjacent Territories
- The Challenges of Pulmonary Rehab in Facilities May Be Overcome in the Home
- EFFORTS’ Jean Romme Attended ATS 2019 and Took Notes for Us
- Boehringer Ingelheim, Alberta Government Create Partnership to Improve Patient Care
- Use of Inhaled Steroids May Reduce Lung Cancer Risk in COPD, Study Suggests
- Add–on Fasenra Does Not Ease COPD Exacerbations, Phase 3 Results Show
- First Patients Successfully Treated in the Nuvaira AIRFLOW–3 COPD Pivotal Trial
- Georgia Hospital Using Zephyr Valve System to Treat Breathing Problems Due to Emphysema
- Analysis Shows Effectiveness of Verona’s Ensifentrine Treatment on COPD Symptoms
- Can Vaping Cause Lung Problems?
- E-–Cigarette Use, Flavorings May Increase Heart Disease Risk, Study Finds
- Azithromycin May Reduce Treatment Failure After COPD Exacerbations
- Telehealth Rehabilitation Lowers Hospital Readmissions After COPD Exacerbation, Study Finds
- Common Lung Diseases Associated With Cardiovascular Risk
- With Prevalence of Type 2 Diabetes and COPD Increasing Worldwide, Researchers Look for Links
- COPD Exacerbation from Biomass Smoke Likened to Risk Posed By Tobacco Smoke, Study Cautions
- Eisenhower Health 1st in Southern California to Offer Landmark Treatment for COPD/Emphysema
- Carrot Rewards Wellness App Launches COPD Campaign – Go Canada!
- COPD Patient Quality of Life Improved by Integrated Disease Management
- FDA Gives Marketing Clearance to Loop Wearable Wristband that Remotely Monitors COPD Patients
- Overnight In–House Intensivists Don’t Clearly Improve Care: Review
- Titrating PEEP Using Esophageal Pressures Did Not Improve ARDS Outcomes (EPVent–2)
- CSA Medical’s RejuvenAir System Gets FDA Breakthrough Device Designation But What Does It Do?
- Circassia Adding Cardiovascular Safety Data on Tudorza Label for COPD Patients
- FDA Clears Spry Health’s Remote Monitoring Wearable for COPD Patients
- FDA OKs Duaklir Fixed–Dose Combination Inhaler for COPD
- Temple Hospital First in Nation to Implant New Valve into Lungs of Emphysema Patient:
- New Tool Identifies Support Needs of COPD Patients, Helping to Make Care More Personal and Holistic
- How the Keto Diet can Help People Breathe Easier
- Incorporating Healthy Habits to Help Manage COPD: A Specialist’s View
- American Lung Association® Nutrition and COPD
- Non–Invasive Imaging Technique Valid for Identifying Small Airway Disease in Lung
- Patients and Caregivers New Access to FDA “Request to Connect”
- El Camino Hospital 1st in California to Offer New Treatment for Severe COPD/Emphysema
- Daily Aspirin Might Ease COPD Flare–Ups
- US Senators Relay Personal Experiences as They Chastise Pharma Execs for High Drug Prices
- 2019 Important Alert for Medicare Patients Who Use Supplemental Oxygen–especially Liquid O2
- Patient–Reported Consequences of Community–Acquired Pneumonia in Patients with Chronic Obstructive Pulmonary Disease
- The Lung is Not the Only Organ Affected by Air Pollution
- Development for Asthma, Allergies and Other Respiratory Diseases
- Natural Ways to Cleanse Your Lungs
- Atrial Fibrillation Prevalence Increasing in End–Stage COPD
- Statins Linked to Better Outcomes and Improved Lung Function
- When Mucus Can be Key to Treating Colon and Airway Diseases
- Researchers Breathe New Life into COPD Research Using Mouse Models
- FDA Approves 1st of Wixela, Generic of ADVAIR DISKUS®
- Long–Term Use of Statins Reduces Mortality, Inflammation in COPD
- ß–Blocker Therapy and Risk of Chronic Obstructive Pulmonary Disease
- LUNG REGENERATION Mayo Clinic center For Regenerative Medicine
- Flu Shot Crucial for Anyone With COPD
- Smoking Cessation Key Component of Cancer Moonshot Program
- What Exercises Can Help Increase Lung Capacity?
- Download the 2019 GOLD Reports for Personal Use
- Optimizing US Home Oxygen Therapy – Addressing Patient and Clinician Reports of Problems with Home Oxygen Accessibility
- COPD and Anxiety: Researchers Test Promising Approach
- Which Patients With COPD Are Affected the Most by Extreme Weather?
- New Mucus Study Could Hold the Key to Clearing Your Phlegm
- Humidity Levels and COPD
- To Better Treat COPD, Scientists Look to Tailored Approaches for Deadly Lung Disease
- What to Know about Steroids for COPD
- Mucus, Cough and Chronic Lung Disease: New Discoveries
- Myths about COPD
- Does COPD Show Up on an X-ray?
- Does High Altitude Affect COPD?