Breathe Better, Live in Wellness: Winning Your Battle Over Shortness of Breath by Jane M Martin,
Infinity Publishing (2003)
Living with lung disease can be confusing, lonely, and frightening. Read stories of people surviving and thriving with lung disease.
The Chronic Bronchitis and Emphysema Handbook by François Haas, John Wiley & Sons (1990)
Dr Francois Haas is an unusually gifted scientist and a compassionate human being.–HOWARD A RUSK, MD Founder and Chairman, Rusk Institute
The bestselling guide for chronic bronchitis and emphysema sufferers–newly revised and expanded. For the millions of people diagnosed with chronic bronchitis and/or emphysema, this bestselling guide is now revised and expanded to offer the most up–to–date information available. From helping you understand your disease and its proper care to showing you how to restore vitality and satisfaction to your relationships, Dr François Haas and Dr Sheila Sperber Haas provide you with the facts and information needed to find the right treatment and take full advantage of it. Written in a clear and helpful style, The Chronic Bronchitis and Emphysema Handbook now includes current information on useful complementary approaches–including herbal therapy–plus effective exercises and the latest medical advances. You’ll discover:
- How to find the right doctor for you and discuss your treatment options
- How to deal with HMOs and the companies that provide supplemental oxygen
- How to manage stress and anxiety
- How to slow your disease and substantially improve your quality of life
- A variety of helpful resources accessible by phone or web
- The newsletters written by experts that will keep you up–to–date
The Comfort of Home for Chronic Lung Disease: A Guide for Caregivers by Maria M Meyer, Paula Derr, Caretrust
This book helps family members and caregivers understand the day–to–day issues confronted by people with chronic lung disease, a complex and severe condition. Here readers learn how to come to terms with the disease and which medications can successfully treat it. There’s also info on arranging the home to make it comfortable and free of allergens, purchasing special equipment, traveling with oxygen, and providing adequate nutrition when weight loss is a problem. Each chapter contains special sections to help caregivers cope, including vital strategies for stress reduction and ways to avoid caregiver burnout.
COPD for Dummies by Kevin Felner, Meg Schneider, (1st published January 1st 2008 as ebook)
Make your home COPD friendly. This is your reassuring guide to understanding and managing COPD and getting on with your life. Want to know more about COPD? This straightforward guide provides clear information about this progressive disease, explaining how to recognize the warning signs, get diagnosed, and choose the best treatment. You’ll see how diet, exercise, and medication affect your symptoms and make your life easier. Discover how to: know your risk factors; find the right doctors; quit smoking, start exercising, and change your diet; improve your overall health; prepare for emergencies; and, help loved ones with COPD.
Coping with COPD: Understanding, Treating, and Living with Chronic Obstructive Pulmonary Disease by Elaine Fantle Shimberg,
St Martin’s Griffin (2003)
Coping with COPD: Understanding, Treating, and Living with Chronic Obstructive Pulmonary Disease is the first hands–on guide to living and coping with an insidious disease that affects tens of millions of people
Experts estimate that as many as thirty–five million Americans literally cannot catch their breath—they are suffering from Chronic Obstructive Pulmonary Disease. The fourth–leading cause of death in America, COPD is a combination of chronic bronchitis and emphysema with airflow obstruction.
In this clear, concise, and up–to–date guide to dealing with and living well with COPD, readers will learn:
- How to navigate activities of daily living, from applying make–up to continuing work
- How to quit smoking—at any age
- How oxygen therapy may help you
- How to tailor diet to meet new nutritional needs
- How to foster a useful patient/doctor relationship and how and when to visit a pulmonologist
- How to tailor your diet to meet your new dietary needs
Coping with Prednisone (and Other Cortisone–Related Medicines): It May Work Miracles, but How Do You Handle the
Side Effects? by Eugenia Zukerman, Julie R Ingelfinger, St Martin’s Press (1997)
Approximately one million Americans per year take high doses of prednisone and related drugs (glucocorticoids) to treat serious illnesses and conditions ranging from asthma to rheumatoid arthritis to kidney disease to organ transplantation. Wile these medicines may have unpleasant, even devastating side effects, including gastrointestinal problems, intense mood swings, changes in hair and skin, and increased susceptibility to infection, they may also be the only treatment available for serious or life–threatening illnesses.
When the world–renowned flutist Eugenia Zuckerman was prescribed prednisone to combat a rare lung disease, she teamed up with her sister, Julie R Ingelfinger, a well–known specialist in pediatric nephrology and hypertension at Massachusetts General Hospital in Boston, to write the first ever, comprehensive guide for patients undergoing this difficult treatment.
Packed with everything your doctor didn’t have time to tell you, including recipes, exercises, and tips based on personal experience, Coping with Prednisone is an invaluable handbook for health–care workers, caregivers, and especially for patients themselves.
Courage and Information for Life With Chronic Obstructive Pulmonary Disease by Brooke Nicotra, Brooke Nicotra,
New Technology Publishing (2001)
The central goal of “Courage and Information” is to help people with COPD to actively manage their own health care– in order to minimize the impact of COPD, feel better, and enjoy a fuller, more satisfying life. This comprehensive guide combines the experience and insights of a patient with the expertise of medical and rehabilitation professionals. The authors explain medical and surgical treatment as well as how people with COPD can use rehabilitation terchniques to maintain and improve lung function, cardiovascular fitness, and their emotional outlook; and guide them to use medications, exercise, supplemental oxygen, nutrition, smoking cessation, and they review options for managing severe disease.
Carter (rehabilitation physiology) and Nicotra (pulmonary medicine) developed the rehabilitation program at the Tyler Texas Health Center. The needs and feelings of the patient are seen from the perspective of Tucker, a founder and director of the Cape COPD support group. Dr Thomas Petty, MD, director of the NIH educational program in COPD, discusses prevention, education, and early intervention. Dr Brian Tiep, MD, an authority on COPD rehabilitation, underscores the potential of patients to manage their disease.
Enjoying Life W/Chronic Obstructive Pulmonary Disease 3rd ed by Thomas L Petty, Louise M Nett, Laennec Publishing
“Enjoying life with COPD” is written for the patient diagnosed with chronic obstructive pulmonary disease, (COPD). It is an excellent source of information pertaining to improving the quality of life of patients with COPD. It is a must read for patients interested in becoming more informed about their condition and how they can be more active in their own care. Chapters: Work, Travel & Recreation, Oxygen, Daily Living, Pulmonary Rehabilitation, Medical Management, + more.
Huffin’ n Puffin’: Living with COPD by Leland Gordon Vogel, Infinity Publishing (2013)
Huffin’ ’n Puffin’: Living with COPD – provides practical information about living with COPD – the 3rd largest cause of disability and 4th largest killer disease. Written by a COPD patient, this book fills a void of practical information for COPD patients, families and caregivers everywhere. Using stories and poetry in a light–hearted manner, the author explains what COPD is, explores diagnosis, treatment, medications, doctors and caregivers, plus living and coping with the disease on a daily basis. Including a Glossary and COPD Resource Guide, the book becomes essential reading for every COPD patient and family member.
Life and Breath: The Breakthrough Guide to the Latest Strategies for Fighting Asthma and Other Respiratory Problems — At Any Age
by Neil Schachter, Harmony (2004)
The fourth leading cause of death in the United States, COPD, or chronic obstructive pulmonary disease, affects an estimated 35 million Americans. Yet only half are aware that they are seriously ill. Life and Breath, by Dr Neil Schachter, is the first book that alerts people to their risks for COPD and explains the steps they need to take to prevent the development of this debilitating and often fatal lung disease.
Life and Breath begins witha quick quiz to rate your risk for COPD. It explains the steps of a complete pulmonary work–up and teaches you about the painless, inexpensive six–second test that can save your life.
We all know that diet, exercise, and environmental changes can reduce the risk of heart disease and some types of cancer. Now, for the first time, Life and Breath provides the medical and lifestyle steps that can prevent, treat, and sometimes reverse the signs and symptoms of chronic lung disease. Dr Schachter discusses the role of antioxidants in treating asthma and chronic bronchitis, explains why indoor exercise is better if you have irritable airways, and provides a supportive, simple, and successful plan to quit smoking.
Life and Breath takes you on a tour of your own home, pointing out sources of irritants and allergens that can cause pulmonary problems. Dr Schachter explains how to improve indoor air quality to protect your lungs at any age, on the job, in your home, and on the road.
If you are one of the 15 million Americans with asthma, or one of the 94 million current or former smokers in this country, Life and Breath is the one book you need to stay alive and well.
The Quiet Killer: Emphysema/Chronic Obstructive Pulmonary Disease by Hannah L Hedrick, Hannah L Hedrick, Austin H Kutscher,
Scarecrow Press (2002)
The Quiet Killer opens the door into the often unpublicized world of emphysema and Chronic Obstructive Pulmonary Disease (COPD), offering new hope and insight for sufferers and their loved ones. COPD/emphysema, the fourth most common cause of death, is this nation’s most rapidly growing health problem. Chapters written by medical professionals, caregivers, and family members combine to provide an important resource for the medical practitioner. Information is included on the growing options available for COPD sufferers. The Quiet Killer also discusses managing the advanced stages of the illness as well as palliative care and end–of–life issues. It includes information about living with mechanical ventilation, as well as nontraditional approaches to COPD treatment, hospice care, and patient advocacy. This valuable research–based resource provides a wide array of information in one handy volume. It will be a welcome addition to medical and hospital collections.
Shortness of Breath: A Guide to Better Living and Breathing by Andrew L Ries, William D Larsen, Roseann Myers, Trina M Limberg,
Jamie B Sheldon, Patricia J Bullock, Toni Pfister, Dawn E Sassi–Dambron, Mosby (1995)
For more than 25 years, SHORTNESS OF BREATH: A Guide to Better Living and Breathing has been a helpful tool for educating patients about chronic lung disease, specifically chronic obstructive pulmonary disease. This user–friendly book presents a wealth of pertinent information in a style the average reader can comprehend. SHORTNESS OF BREATH covers the psychological and physiological impacts of lung disease, offering suggestions on exercise programs, relaxation techniques, travel precautions, diet, and more.
Smell the Rose Blow Out the Candle by William R Probstfield, Xlibris (2003)
This book is a balanced personal story and useful resource for pulmonary rehabilitation information. Rather than a treatment handbook, it is one patient’s perspective of available ways to cope with chronic disabilities. It is a comprehensive mind, body and spirit approach to wellness. The metaphoric title, Smell The Rose Blow Out The Candle is the visualization of purse–lip breathing; a lesson lung patients must learn to breathe effectively with COPD, especially emphysema. The author’s 15 year successful journey to conquer a quality life with severe emphysema offers hope for those wanting to improve their skills in dealing with sick lungs and broken spirits.
Top 10 Tips for Living Your Best Life with COPD by the Pulmonary Education and Research Foundation (2018)
This book covers preventing panic went short of breath, drinking alcohol, dry mouth, exacerbations, pulmonary rehab, singing, life hacks, COPD discrimination between the sexes, stem cell treatment, and breathing techniques.
You can obtain this book as a free download by joining the Pulmonary Education and Research Foundation (PERF) email list.
When Breath Becomes Air by Paul Kalanithi, Abraham Verghese, Random House (2016)
For readers of Atul Gawande, Andrew Solomon, and Anne Lamott, a profoundly moving, exquisitely observed memoir by a young neurosurgeon faced with a terminal cancer diagnosis who attempts to answer the question What makes a life worth living?
At the age of thirty–six, on the verge of completing a decade’s worth of training as a neurosurgeon, Paul Kalanithi was diagnosed with stage IV lung cancer. One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi’s transformation from a naïve medical student “possessed,” as he wrote, “by the question of what, given that all organisms die, makes a virtuous and meaningful life” into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality.
What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir.
Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. “I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything,” he wrote. “Seven words from Samuel Beckett began to repeat in my head: ’I can’t go on. I’ll go on.’” When Breath Becomes Air is an unforgettable, life–affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both.